Wednesday, June 22, 2011

CCSVI and Neurologists

I'm sure a pig sprouted wings and flew today. My neurologist at the MS clinic was more than happy to talk about my CCSVI treatment and was thrilled with the improvement in my symptoms. He was interested in my experience and we talked at length about MS research that is going on and the direction of research and medication. It was an actual conversation, not one sided. He actually said he was my advocate. Now that is an advocate with the MS drugs. In two weeks I will be off the Baclofen. I am waiting for the oral medications now approved in Canada to be approved by Alberta Blue Cross. When that happens, I can finally stop the needles.
A survey will be coming out to MS patients in Alberta in a few months, collecting data about MS. The survey will cover family history, geographical location, and info about CCSVI, if you have been treated and the results of that treatment. The information is long over due in being collected as a wide research of all MS patients. With so many new theories, they are looking at a lot of data to collect on everything.
My MRI showed one new lesion, a small one. That has been the only change int he last six and a half years.
I will see my own doctor next week to discuss further my health and treatment.

Tuesday, June 21, 2011

Tomorrow

I will see my neurologist at the MS Clinic tomorrow for the first time since I had my CCSVI treatment. I'm not sure how to handle the response I'm sure to receive. Have suggested to my atheist husband that when the neurologist belittles my dramatic results that I should say that if it is not the CCSVI it must be the power of prayer. He is sure the doctor won't buy that either.
I have been lessening the medication I take for the spascity in my legs with no return of symptoms. I'm sure the doctor will find some other reason, like remission after a two year relapse. I'm sure there will be a good story to tell tomorrow.