Friday, May 27, 2011

Waiting for the other shoe to drop...

Things have been going well. I have had a few things scare me lately. News of someone who had CCSVI and was doing well and now some symptoms have returned after a few months. I know, I need to let that one go. I had trouble with my hand yesterday. It took a lot of focus to sign my initials repeatedly in the Grade 3's agendas. But later sitting at my desk I could write fine. I had a day a week or so ago where I was just so tired. When I got up from resting my nerves sent impulses up and down my arms and legs and I had to lay back down. Then I was fine. Just uncertain as to what it all means. They know so very little about CCSVI and MS in general. One day at a time, I guess.

Sunday, May 8, 2011

Sleeping Again

I am up to seven hours of sleep a night. So far it has been good sound sleep for four nights. The six hours was hard to get up from but seven seems to be good. Maybe in a few days I'll try to bump it up to eight hours and see how that goes.
Have been reading and watching news about MS and CCSVI. It is so disheartening. I don't know what to do to open the eyes of the powers that be. I watched a new report with the Alberta Health Minister stating that they have 6-7 million to put into CCSVI when it is proven safe and ethical. Really?!?!?!? What is not safe about angioplasty? It is preformed here everyday. Ethical??? Is it not ethical to treat people who are suffering and help relieve that suffering?? I feel like I'm banging my head against a wall and screaming at the top of my lungs and no one is listening.
Frustration runs high when you know and have felt firsthand the power of healing and others don't believe. Living proof is not enough.
Sorry for the rant! My fellow blogger Marc, a.k.a. the Wheelchair Kamikaze, stirs up my frustration when I read his blog and he shares the corrupt world of big Pharmacy. Read his blog but I warn you, you will be enraged and frustrated too!!

Thursday, May 5, 2011

Community Care Physicians

I chose to go to Albany, New York because of Community Care Physicians reputation and their experience with Interventional Radiology. Albany was not as far to travel as those who go to Europe and the American medical standards are the best and are what Canada's medical standards are based on.
You can check out their website by clicking here.
I got bumped up the list by requesting a Saturday appointment. There was additional costs but it moved me up the wait list by six months.
The care I received was second to none. My mom was with me and she is a retired nurse. She was impressed with the staff and facility.That says a lot as she has high standards for health care especially for the care of her daughter.

Wednesday, May 4, 2011

Sleep Issues

I have been having trouble getting a restful sleep for over a week. Some nights I feel like I am awake the whole night.
I saw my doctor yesterday. She suggested that I no longer need to sleep the 9-10 hours I use to just to function. My body is needing to find a new rhythm. So until I start having a better, restful sleep I need to deprive myself of sleep. So the plan is I will only allow myself six hours for sleeping. I will have to stick to this until those six hours become consistently six hours of restful sleep and then I can increase the amount of sleep until I find equilibrium. It makes sense to me. This new body that CCSVI has given me is nothing like the old one. It moves so much easier and has energy to do things through out the day. So it makes sense that it doesn't need as much sleep. So I will find a new rhythm and I hope it is soon because I need some sleep.
Sweet Dreams!!!